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Patient-Directed Uses vs. The Platform

By Adrian Gropper, MD This post originally appeared on The Health Care Blog. This piece is part of the series “The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?” which explores whether it’s...

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Telehealth Policy Brought to the Fore in the COVID-19 Pandemic

By Vrushab Gowda The COVID-19 pandemic has highlighted the value of telehealth as both a tool of necessity (e.g., minimizing infection risk, conserving thinly stretched healthcare resources, reducing...

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The False Dilemmas of the Fifth Circuit’s HIPAA Ruling

By Leslie Francis In a caustic opinion issued on January 14, the Fifth Circuit vacated penalties assessed by the U.S. Department of Health and Human Services (HHS) against the University of Texas M.D....

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Data Talking to Machines: The Intersection of Deep Phenotyping and Artificial...

By Carmel Shachar As digital phenotyping technology is developed and deployed, clinical teams will need to carefully consider when it is appropriate to leverage artificial intelligence or machine...

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Lessons Learned from Deep Phenotyping Patients with Rare Psychiatric Disorders

By Catherine A Brownstein and Joseph Gonzalez-Heydrich Given the potential sensitivities associated with describing (i.e., phenotyping) patients with potentially stigmatizing psychiatric diagnoses, it...

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Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products

By Vrushab Gowda As digital health products proliferate, app developers, hardware manufacturers, and other entities that fall outside Health Insurance Portability and Accountability Act (HIPAA)...

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A Proposal for Localized Review to Safeguard Genetic Database Privacy

By Robert I. Field, Anthony W. Orlando, and Arnold J. Rosoff Large genetic databases pose well-known privacy risks. Unauthorized disclosure of an individual’s data can lead to discrimination, public...

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We Need to Do More with Hospitals’ Data, But There Are Better Ways

By Wendy Netter Epstein and Charlotte Tschider This May, Google announced a new partnership with national hospital chain HCA Healthcare to consolidate HCA’s digital health data from electronic medical...

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New Rule Puts Medical Data in Patients’ Hands

By Jayson Marwaha and Tiffany Tuedor  On April 5, 2021, a quiet, but potentially transformative shift regarding patient access to data occurred. Health systems are now required to provide patients with...

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Perspectives on Data Privacy for Direct-to-Consumer Health Apps

By Sara Gerke and Chloe Reichel Direct-to-consumer (DTC) health apps, such as apps that manage our diet, fitness, and sleep, are becoming ubiquitous in our digital world. These apps provide a window...

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